I need help or advice or something, please!

So I’ve gone through way too many drug combinations and trials and different treatments over the past, say, six years? But it wasn’t until the later ones that I started experiencing bad side effects. Like last summer I was trying a different thing for pain and it was working great until I started to forget what I was doing or where I was going or who the people around me were. Stopped the drug, problem went away.

Well I had a similar situation this past semester, but I woke up each day and my hearing was just less and less each day. I went to clinic, they told me I had a severe ear infection (which I did), gave me antibiotics, and sent me on my way. My hearing never got better until about a month later when I made some poor choices, ended up in hospital, and was taken off a medication that was causing my depression symptoms to worsen.

Now I work in a pharmacy where everyone whispers because confidentiality, which is perfectly fine, but I can’t hear anything anyone says to me! Everyone else can hear them perfectly fine, but I can’t. Or I hear them say something, but not the right thing. I’m not getting all of the sounds and I don’t know what to do. I don’t know if I’m just not a super hearing pharmacist yet, or if there is actually something wrong with me because of the medications I was taking.

Is that even a thing? I mean, Mikey lost most of his hearing from his treatment, but he was on the highest doses of the strongest chemo that’s legal to put into small children. I was on gabapentin.

personal chronic pain spoonie spoonie probs hearing loss help medicine side effects what? what did you say?

My admission decision comes tomorrow and I am so incredibly nervous and stressed about it. My essay was so wrong, it was bad. It wasn’t written right, I should have focused on how my school performance was effected by losing Mikey. Ugh I’m a wreck. This past week has just been a wreck.

Posted on Sweet Sally Sunshine’s facebook page. Sally is battling Infant Mixed Lineage (MLL) ALL Leukemia which is seen in fewer than 90 infants a year and extremely difficult to treat. This little cutie is currently in Memorial Sloan Kettering Cancer Center with an infection and drives past the Empire State Building on her way to and from the hospital from her home. While Sally might be too young to understand that what having the ESB lit up gold might mean, I know so many other kids there would love to drive by and know that it’s lit for them.

Posted on Sweet Sally Sunshine’s facebook page. Sally is battling Infant Mixed Lineage (MLL) ALL Leukemia which is seen in fewer than 90 infants a year and extremely difficult to treat. This little cutie is currently in Memorial Sloan Kettering Cancer Center with an infection and drives past the Empire State Building on her way to and from the hospital from her home. While Sally might be too young to understand that what having the ESB lit up gold might mean, I know so many other kids there would love to drive by and know that it’s lit for them.

empire go gold empire state building empiregogold childhood cancer awareness childhood cancer childhood cancer advocate childood cancer survivor sibling of cancer

What is the point of them going gold though?

The Empire State Building lights up different colors to show support for different organizations and causes. When people see it lit up these different ways they wonder why, they look it up, they ask questions. It’s a night (or two) of awareness being broadcast to millions from the tallest building in New York City. The ESB lights up pink for breast cancer awareness and other worthy causes; but they’ve also lit up for the Teenage Mutant Ninja Turtles, India’s Independence Day, and for the Democratic National Convention (despite it being a part of their policy to not participate in lighting related to politics).

We need more awareness for childhood cancer, this will lead to more funding and research which will let us find better treatments and eventually a cure. What we’re going through for treatments to still be faced with a 0% survival rate is absolutely not okay. The fact that the ESB is able to deny our requests, argue against them, and call us abusive… that’s appalling. 

childhood cancer childhood cancer awareness childhood cancer advocate empire go gold empire state building empiregogold

MUSIC IS MEDICINE

luriechildrens:

image

Photo: Lucas Grabeel wrote an original song for Lurie Children’s patient Samantha titled “Beautiful Day.” The collaboration was made possible through the non-profit organization Music is Medicine.

August 7, 2014

What teen girl wouldn’t dream of having a song written for them by a musician and actor? For Samantha, a 10-year-old patient battling cancer at Lurie Children’s, that dream came true when Lucas Grabeel, a musician and actor currently starring in ABC Family’s Switched at Birth,wrote and recorded an original song for her.

Read More

I have to share this again because celebrities and musicians standing up to childhood cancer and supporting kids through their fight on a personal level like this is just incredible. It gives kids and their families beautiful memories and smiles through a time that is anything but. It leaves us with moments we can think back on and smile about.

Anonymous asked:

I wish you were speaking :((( but you will be there? I'd love to meet you

Don't Forget. Answer:

This is a work in progress. I’ve got a good price for a round trip flight out of my local airport and I guess a decent enough price for a hotel room. The problem is I’m a wimp and I don’t want to go alone so I haven’t booked anything yet.. I’m also terrified of flying…

If I do go I will let you know!

michaeladams17 asked:

What's truth365?

Don't Forget. Answer:

Or, what’s curefest? 

michaeladams17, I think this is an important question, so I hope you don’t mind that I answer this publicly!

The Truth 365 is an incredible, beautiful social media campaign that gives every child fighting cancer a voice. They’ve won Emmy Awards for their documentary films and have been a huge foot in the door to bringing awareness to the reality that childhood cancer is. They’re also here on tumblr at thetruth365. Go follow them, they’re wonderful!

Curefest is a massive festival that is taking place in DC on September 21st, but is being kicked off with a “Night of Golden Lights” the night before at the White House. Its entire purpose is to bring together the many childhood cancer organizations to unite as one voice for kids fighting cancer. There will be speakers throughout the event on the 21st including Lori Earl, mother to Esther Earl, and many other advocates and childhood cancer fighters.

michaeladams17 curefest truth 365 truth365 the truth 365 thetruth365 childhood cancer childhood cancer awareness pediatric cancer pediatric cancer awareness curefest dc

Anonymous asked:

Are you speaking at curefest? The truth365 reblogged your essay and I was sobbing I would love to come see you speak

Don't Forget. Answer:

Oh wow, this is a really sweet message, thank you so much. Unfortunately I’m not speaking at curefest. The event coordinators have been working hard to book some incredible speakers and they’re doing a great job, there are some great names on that list. Maybe one year I’ll be invited, who knows?

curefest childhood cancer childhood cancer awareness